What to Expect in the Final Weeks vs. Days of Life
- Jessica Stielau
- Nov 13
- 2 min read
When someone you love is nearing the end of life, it can feel like you are standing in unknown territory. Families often ask me: What should I expect? How will I know when death is near?
While every death is unique, there are common patterns that can help prepare you for what is to come. Knowing what may unfold in the final weeks versus the final days can bring steadiness in the midst of uncertainty.
The Final Weeks
In the last weeks of life, many people experience gradual changes. You might notice:
Less energy: more rest, longer naps, increased time in bed.
Decreased appetite: eating smaller amounts or losing interest in food altogether.
Changes in focus: withdrawing from social activities, speaking less, turning inward.
Physical changes: weakness, needing more help with daily activities, moving more slowly.
Emotional and spiritual shifts: reflecting on life, talking about ancestors or people who have already died, expressing readiness or fear.
Families often feel uncertain during this time: Is this it? How much longer do we have? These weeks can stretch on, and it is normal to feel both grateful for more time and exhausted by the ongoing caregiving.
This is where a doula can help by supporting communication, helping plan for next steps, and gently preparing everyone for what is likely to come.
The Final Days
In the last days, changes tend to be more pronounced and signal that death is near:
Increased sleep: often unresponsive or sleeping most of the day.
Changes in breathing: irregular patterns, long pauses, sometimes “Cheyne-Stokes” breathing.
Cool hands and feet: circulation slows, skin may appear mottled or bluish.
Minimal intake: little or no food or fluids.
Restlessness or confusion: reaching, talking to unseen people, or appearing unsettled.
A shift in awareness: moving “between worlds,” no longer fully here but not yet gone.
These signs can feel frightening if you don’t know what to expect. With preparation, families can recognize them as part of the natural process.
A doula’s role here is to hold presence at the bedside—steady, calm, and grounded—helping families understand what is happening, creating sacred vigil spaces, and offering support in the most tender hours.
Walking This Path Together
Death is one of life’s greatest transitions. While the signs and changes may feel overwhelming, you don’t have to walk through them alone.
I have been honored to spend time at the threshold, witnessing last breaths and last moments. I know the terrain. I can walk it with you.
Whether in the final weeks, when families are seeking guidance and preparation, or in the final days, when presence and steadiness matter most, I am here to accompany you and those you love.